NADOLOL

I’ve been experiencing migraines for well over 15 years and am currently taking preventative meds (topamax and nadolol as well as emgality injections) and ubrelvy. I am definitely sensitive to all the fun side effects of a beautiful spring bloom 😊 and I’m wondering if being proactive and starting a

I have two daughters both with conditions on the spectrum of vasovagal syncope, POTS, long covid, lyme, CIRS and me/cfs. I myself am a research scientist but not in the medical field. I have enough science background to wade through most of the medical journal articles. I've been reading medical

So, glad I found this Reddit. So let me give a brief summary of my story. I’m a 36 year old woman. Back in 2020 in September I had strange experience to where it felt like I was about to tip over while taking a shower. It completely scared me and I jumped out the shower and went and laid down. It w

My older sister and Father have Marfans too; I was diagnosed very early and have been monitored yearly and taking Nadolol for my whole life. I Have had no changes since going into the adult hospital at 19 and prob before then so it’s been pretty lax for me; I’m 28 now. Since turning 19 though, I hav

Hey - I’ve seen a bunch of posts asking about experiences with the Covid vaccine so I just wanted to share mine for what it’s worth. I actually didn’t have POTS **until** I got the vaccine. 42 hours after my second dose I developed orthostatic tachycardia, shortness of breath, chest pain, heart palp

Welcome to the club. This is a quick and dirty guide to the things you may want to know. *This is based entirely off of my own experience and may not be completely applicable to your situation.* ​ 1. **Yes, migraines can be terrifying.** The first migraine I got was in middle school and

Hi! I posted in here last year asking about Dr. Kinsella in St. Louis since I was referred to him. (Posted under a different account then - had phone issues and wound up having to make a new account). Anyway, had my appointment with him yesterday and just wanted to share that I had a great experienc